A Love Story in the Shadow of Lewy Body Dementia

Lewy Who? is not only a medical memoir—it’s a love story. In this moving account, we follow a devoted partner’s tireless effort to care for John, whose decline from Parkinson’s to Lewy Body Dementia is as unpredictable as it is devastating. Each page offers a deeply personal reflection on caregiving, identity loss, and the fragile balance between hope and heartbreak.

What sets Lewy Who? apart is its compassionate perspective. The author doesn’t shy away from the raw realities—sleepless nights, emotional fatigue, and moments of sheer helplessness. Yet
through it all, there’s a powerful undercurrent of humor, family warmth, and resilience. The book shines a light on a disease too often overlooked, providing insight and validation to countless caregivers who walk a similar path in silence.

Lewy Who? is a heartfelt reminder that love endures—even in the face of an illness that steals memories and distorts reality. It’s an essential read for families, advocates, and anyone looking to understand the emotional landscape of neurodegenerative disease through a deeply human lens.

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ABOUT THE AUTHOR
J. j. Johnstone

JJ Johnstone is a caregiver and writer. She shares her husband’s fight with Lewy Body Dementia to help others.