J. j. Johnstone

Lewy Who?

A husband’s tremors begin. A wife seeks answers. Lewy Body (a dementia mixing hallucinations and Parkinson’s) strikes. Love fights confusion. A journey of hope and heartache starts.

Lewy Who? II: Into the Fog

Dementia tightens its grip. Hallucinations grow. Falls, fading speech, endless nights. Stories of caregivers battling Lewy Body. Love struggles but holds firm.

Lewy Who? III The Long Good-Bye

Bedridden. Silent. A caregiver’s final vigil. Lewy Body takes all… except their love. A memoir that guts you.

J. j. Johnstone

JJ Johnstone is a caregiver and writer. She shares her husband’s fight with Lewy Body Dementia to help others.

“In dementia’s fog, love guides us. We find light together, even when hope seems lost.”

Early Life & Family

Grew up in a creative family. Loved art and stories from childhood.

Our Book SERIES

Lewy Who? - I

A husband’s tremors. A wife’s fight. Lewy Body’s cruel start.

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Lewy Who? - II

Dementia deepens. Caregivers unite. Stories of struggle, strength, and survival.

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Lewy Who? - III

Bedridden silence. Love’s last stand. A caregiver’s final journey.

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Our Popular Book

Step into the uncertainty of a mind adrift, where Lewy Body Dementia’s shadows loom. Caregivers navigate daily struggles, finding flickers of hope in the fog.

“The fog thickens, veiling reality yet sharpening love’s resolve. Moments of clarity pierce darkness like a dance of resilience where heart and mind collide.”