Janet Johnstone’s Lewy Who? 3: The Long Goodbye is a profoundly moving narrative
chronicling her husband John’s final stages of Lewy Body Dementia. Through intimate, day-to- day experiences, Janet brings to light the emotional, physical, and mental demands of caregiving
— while celebrating the resilience of the human spirit.
This powerful memoir does not shy away from difficult truths. It explores caregiver loneliness, the unpredictable nature of dementia, and the emotional complexities of watching a loved one slowly disappear. Yet, amidst the heartbreak, Janet finds moments of tenderness, humor, and reflection, demonstrating how love endures beyond memory loss.
Lewy Who? 3 serves as both a guide and a companion for those walking similar paths. Janet’s emphasis on routine, faith, empathy, and validation of her husband’s reality offers practical wisdom and compassionate caregiving strategies.
Above all, this book is a tribute — to John, to every dementia caregiver, and to the enduring bond between patient and caregiver. It urges readers to listen, to laugh, and to live each moment fully, no matter how fleeting.
A beautiful, necessary read for families, healthcare professionals, and advocates seeking deeper insight into dementia care.
