The Power of Personal Storytelling in Dementia Caregiving

In Lewy Who? 3: The Long Goodbye, author Janet Johnstone delivers an unflinching, heartfelt portrayal of life as a full-time caregiver to her husband John, who battled Lewy Body Dementia. This compelling memoir is more than just a personal journey — it’s an important contribution to the growing conversation about dementia awareness, caregiving challenges, and the emotional complexities families endure.

What sets this book apart is its authenticity. Janet courageously documents not only John’s decline but also the isolation, emotional fatigue, and unexpected moments of joy that shape a caregiver’s world. Her candid reflections provide invaluable insights for those navigating similar paths, offering comfort in knowing they are not alone.

This third installment in the Lewy Who? series stands as a testament to resilience, compassion, and the enduring power of love. It highlights the critical importance of community support, humor, and empathy in the face of an unforgiving disease.

For anyone impacted by dementia, or those seeking a deeper understanding of its toll on families, Lewy Who? 3 is a must-read — an honest, hopeful, and deeply human story that reminds us of the strength found in vulnerability.

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ABOUT THE AUTHOR
J. j. Johnstone

JJ Johnstone is a caregiver and writer. She shares her husband’s fight with Lewy Body Dementia to help others.